His and Her Health

Hi there, I need some support, I have read here and feel you are all very kind and I have nobody, but this sick body, it is terror...my kids are with their dad's and I need to get better, anything. I have a team of doctors, some ok, I am very ill for the state insurance doc.s I have, but my sweet father is determined to help and it has come to something, they ruled out this is not coming from my spine, but, this pain can get over a ten plus and I am never under a five. They put me into the hospital and called this "intractable pain" and every doctor refers you to the next, it is just so many areas of so much pain. I look like this tiny dumb blonde-at age 42, but I am not, I am very very thin (90 pounds) from being so ill, people judge so cruel, you know, the (druggie comments) and just cruel people when you are fighting for your life. I am so sweet, I have the best kid who need me, and I pray, my dad sent the clinic $900 for botox, one vile, but the rectal pain is worse than the urethral pain, that came next, I saw Dr. Schlomo Raz, the best uro in the world, and he knows, yet the rectal pain (I have pudendal neuralgia and had the pudendal nerve relase a year and a half ago) but thi is just raw nerves inside my rectum, then all the muscle spasms that are too tight, PT made me worse, so something has to help calm down the nerves, it is torture, sitting on fire is my life, and nerve pain and I am so alone and scared and I have to have hope, please God, I just need some friend, people just do not understand. I am blessed to have a sweet home, but you have nothing without your health, and your kids and my kids fathers were cruel enough to take the kids from me as too sick, and it is so mean, and I can't fight them this sick, so it is sad, my kids are in 4th, 5th and 6th grade, and I carried a baby through all of this, alone, and my kids and i did it, they are so sad, they want to come home, and the doctors have to now prove I am fit, to take care of them, and yet I have gotten worse since PT, yet I pray the Botox will work Wednesday, please pray for me and my kids, we are the sweetest family, and nobody can break us apart, so please ask God to help us. It is time, years of torture, pain so high I cannot wear clothes on the lower half, going out is so hard, I only go when I have to.
Thank you for being here.
Love.
lexy

Dr. Can you reply to help me. My father will fly me to any hospital anywhere to get me better if you know. I have been on pain meds for 6 years (oxycodone) right now, as small as I am, my tolerance is very high, sad. B & O Suppositories for rectal pain, Neurontin (lost five pounds since I started it, yet they still want me to take it), Klonopin at bedtime (since college), Imipramine (antidepressant for the bladder), Oxybutyin, Urelle (Bladder anti-spasmaadodic), Fioricet for my migraines and I eat a very bland diet for the IC, lot of water, nothing to drink but water, and ibuporin when needed but makes me depressed worse. Anyhow, if the botox does not work, is there anywhere in the country we could go to deal with all these problems to ge me help instead of spiralling down every month, my father would fly a emregeny plane anywhere if there could be better help. I cathetorize my bladder with lidocaine/marcaine/heparin when needed. Failing, yet determined, getting nowhere, praying the botox will help on wed...a very good pudendal neuralgia doctor? Any advice? please, I need to get better, managable, so many problems, and i have had 8 periods since christmas...I used to have my period every 24 day, alway, now it comes almost every week or two? Why? My entire life is doctor appointments, yet getting nowhere the more I try.

Lexy,
I have pudendal neuralgia and vestibulitis and sacral pain and tailbone pain. I had pudendal nerve decompression in 2006.
Has anyone suggested the spinal cord stimulation to you? What about POPPS syndrome? I know what you mean about being thin. It's hard to eat when you are in pain all of the time. I had a doctor tell me today that if I was heavier I wouldn't have so much pain, then I asked him why when I was 20 pounds heavier the pain was still there? He was speechless.
One thing that I have found that helps is something called a tens unit. It distracts the brain from the pain by sending a tiny electric shock to the skin. It is not painful, and it helps some of my pains.
The Spinal cord stimulation may help with the bladder issues as well. There is some extremely promising work with that. Feel free to email me. My email address is listed. Where do you live?