How to differentiate WHY the vestibule hurts & know
Hi,
I read Dr Goldstein's very informative comment that Vestibulitis is a symptom, rather than a condition, and the important this is to understand WHY you have it. (here it is for those who missed it:
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I think that you are asking the correct questions but you have to think of VVS (or vestibulodynia as it is now called) as a symptom, not a diagnosis. Basically, vestibulodynia, is "pain at the vestibule." Its like "it hurts to walk, and I went to the doctor and he figured out that it was my knee that hurts." BUT, if you walked out of the doctors office with the diagnosis of KNEE-Odynia, you would think that the doctor stinks- do you have torn cartilage, a torn ligament, arthritis, etc.
Well vestibuolodynia is the same thing. Your vestibuel hurts, but Why- Is it hormonal, tight muscles, too many nerve endings, a dermatologic disorder such as lichen sclerosus or lichen planus, inflammation originating from inside the vagina....
All of these things cause vestibulodynia, AND, obviously, each cause is treated very, very differently.
So you need an exam by someone who really knows what they are doing to answer these questions before deciding on the best treatment.
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I have been diagnosed with Vestibulitis (then vulvobudynia or whatever the new name is), and subsequently with Lichen Sclerosus. (I also have fibromyalgia & chronic myofascial pain)
My question is, can you have several causes from Dr G's list? or, once you have one diagnosed, can you exclude the others? They are written out as .... or.... or.... - can it also be .... and.... and .... and .....?
Eg - i have a Lichen Sclerosus diagnosis. Could I also have an overgrowth of nerve endings, tight muscles, and hormonal issues? (i have vaginal dryness).
Once something like 'big' like Lichen Sclerosus is diagnosed, do you focus on that (as the Why) rather than on VVS?
Do you personally treat LS, Dr Goldstein?
Many thanks for your thoughts on this,
Sarita