Re: question for the physician and/or Ms Herzig
It sounds by your description that there is pelvic floor dysfunction associated with your current condition/symptoms. It does not sound like IC, but I cannot diagnose medical conditions and definitely not on email.
It is common for women to have both VVS and IC, but I would say that IC should have bladder symptoms either or frequency, urgency and pain (one or any of the combo). A urologist specializing in IC would do testing for you. This may include Cystoscopy w/hydrodistention or perhaps a potassium sensitivity test; some just use current questionnaires. First though they rule out other issues such as infections.
Again, from your description, it does not sound like IC though.