His and Her Health

Hello All. Im new to this site and sorry If i bore you with my kinda long winded story, but I would really like some help.
Its been over a year now ive been having these life changing problems. When it first started I noticed for around a month I had quite bad pains in both my sides, I couldnt walk properly, I had a lovely life I was at college and was only 17 so this didnt get me down too much so I left it to just go away. Then around 2-3 weeks later it started, I started gettin these weird feelings down below, I couldnt tell exactly where they were coming from, I first thought it was me been aroused, but that seemed weird as although I had been sexually active before with one partner (my first love who i was with for 2years) i had never got 'turned on' just sitting around myhouse thinking of nothing to do with sex. It went on for around a week and I hated it, orgasming didnt help and I just felt depressed, i read up on the internet about sexual arousal syndrome and i got all scared and cried loads and didnt get out of bed for a week only to eat, cus i thought well thats it then lifes ruined, and it was too embarrasing for me to talk about. However one day i went out and it went, so I thought it must have all bein in my head. My life went on for a few months everything felt like it was back to normal. Until it came back again, but this time it didnt go, I had it for around a month none stop and I got to the point were I wanted to die. I went to the doctors around 3times where they told me it was all in my head, however i was diagnosed with a UTI.
Then it went away again for around 3months, my life once again got back on track I had my 18th birthday party and i was happy again, though slightly worried of it coming back. Then something else happened, I started suffering from pain when weeing, burning hurting throbing and stabbing all around the area, i put it down to a UTI due to having sex, as i was seeing my ex again. However I read up how to prevent them and did so, but they kept returning, and I had around (no exaduration) 10 unrine samples on different trips back and forth from the doctors and each showed when the doctor checked, an infection, though when sent off for examination at the lab it came back that I DIDNT have a UTI like the doctors thought I was on plenty of antibiotics which did seem to help however the doctor told me this was a coincedence as they shudnt of helped as I didnt have a UTI.
So week after week went by now and then I would have about 3-7 days of releif from any weird sensations or painful urination and tummy aches. But within the last around 5months I have started to suffer with alot of discharge, my knickers are soacked and I have to change over 3times a day. I had tests and swabs for STI's and STD'S and this came back clear, since then iv been in so much pain when urinating iv had to be rushed to hospital, Ive got a scan next week of my bladder.
the pain started again a couple of days ago and is still slightly here, only its more the discomfort feeling in which I cant tell if its coming from my cliterus or not, however I dont feel aroused at all, I never feel like im going to orgasm as some women complain of with sexual arousal syndrome, i often have pains in my sides and sometimes back.

what could this be? i cant motivate myself to do anything and I am extremely depressed i cry all the time and i cant see me been able to live my life this way it has taken over my once almost perfect life and turned it into a nightmare Im only 18 nearly 19 and I feel like my life is ruined before its begun, iv tried explaining to doctors and on other discussion boards and ive had no luck, or met nobody who understands and i feel very alone. I have ended it with my boyfriend and I cant imagine me been with anybody as I cant motivate myself to be happy and would only bring somebody else down.
if somebody could please offer any suggestions which may give me hope that im not just crazy.
Sorry this is so long
x

forgot to mention sorry, i also have the most painful periods you can imagine, i cant move it hurts so much i cry my eyes out, my mom said she suffers but has never seen or heard of any1 suffer as much as me, I am also very heavy bleeding too sorry lol just thought I would add that

Hi,

Hopefully the moderator will bump this to the Sexual Pain disorder and gyn topics boards where more people might respond.

Sounds like maybe vulvodynia and or interstitial cystitis, but I'm not a doctor. You need to see a vulvar specialist or a doctor that specializes in pelvic pain/vaginal pain. Normal gynecologists are sadly uniformed about this stuff. If you can't find a vulvar or pelvic pain specialist try a urogynecologist vs a standard gyn.

Contact nva.org--if you join they will send you a list of doctors in your area. Also you can try issvd.org they can also send you a more limited list of doctors.

In the mean time you should still try to enjoy other aspects of your life. Do not cut off friends for fear of depressing them, you need support. You can also join an online support group and ask the nva if there is an in person support group in your area.

Also do not take anymore antibiotics or use creams for infections unless lab results come back positive.