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A Message from the National Vulvodynia Association
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TOPIC: A Message from the National Vulvodynia Association

2 years, 10 months ago #5485

A Message from the National Vulvodynia Association

NVA Joins Forces with Five Non-Profits to Help Millions of Patients Suffering from Coexisting Medical Conditions

In an effort to help millions of Americans suffering from multiple chronic medical conditions, the NVA, and five other independent nonprofit organizations, have come together to form the Overlapping Conditions Alliance. The new Alliance will promote research into the underlying connection(s) between these coexisting conditions.
Millions of Americans suffer from one or more of these chronic disorders: chronic fatigue syndrome, endometriosis, interstitial cystitis (painful bladder syndrome), irritable bowel syndrome (IBS), temporomandibular joint and muscle disorders (TMJ) and vulvodynia. Health care providers receive limited training on these conditions, leading to frequent misdiagnosis and inappropriate treatment for millions of patients.
As part of this effort, the Alliance has launched an informational web site - http://www.overlappingconditions.org/ indicate that these conditions often 'overlap.' Much more research is needed to understand the connection(s) and develop more effective treatments. All of these conditions cause enormous physical and emotional distress for sufferers and their families. In addition, they cost the US billions of dollars each year in medical costs and lost productivity.

The mission of the Overlapping Conditions Alliance is to change this situation by advancing the scientific, medical, and policy needs of individuals afflicted with multiple chronic conditions. The Alliance is composed of six independent nonprofit patient advocacy organizations: the Chronic Fatigue and Immune Dysfunction Syndrome Association of America, Endometriosis Association, Interstitial Cystitis Association, International Foundation for Functional Gastrointestinal Disorders, National Vulvodynia Association and The TMJ Association.
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2 years, 10 months ago #5486

Re: A Message from the National Vulvodynia Association

We are very interested to read about it, but the link did not seem to work.

Thanks for the help.
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2 years, 10 months ago #5487

Re: A Message from the National Vulvodynia Association

The link appears to be broken,I will have my webmaster check with NVA and hope to have it working sometime tomorrow( Tues.)
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2 years, 10 months ago #5488

Re: A Message from the National Vulvodynia Association

The link is working now in the NVA post.
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2 years, 4 months ago #5489
  • NicoleH
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Re: A Message from the National Vulvodynia Association

Thank you very much for this interesting link. More people should read about that.
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